Monday, April 28, 2014

Still behind...still thankful :)

Had our visit to the out of town breast cancer specialist center and you'll never guess what the verdict of 10 of the most sought after brains in breast cancer research and treatment decided on for me as the next step in my treatment plan...dun dun dun...MORE A/C!!! Yes, the first chemo drug I started with back in November. I know what you're thinking...'but wait Jenn, you told me that was toxic for hearts. You've had your lifetime dose.' Yes, that's true. But remember all of those reasons that I shouldn't have breast cancer...young, healthy, no other health problems...they think I can handle it and they think it's the best option out there for me (p.s. the oncologist I consulted with reminded me many times that there is no standard of care for me, there's no study to cite, not even another woman she knows of that is exactly like me to compare to).

So, there are some other things up in the air regarding trials at the out of town center that sound really cool and exciting, but there are more tests that must be run to see if I qualify to participate. Not only might it be awesome for me, but it might benefit other people if I can get into the trial. Again, there are few people like me, so that panel of 10 experts over there at the breast specialist center were VERY excited that I made the trip down to visit them and will be VERY excited if I can participate in this trial. Will keep you posted on how that unfolds for us.

2 more rounds of A/C is what I'm starting. And I'm starting it today. We will be riding the chemo train for another month. Probably feeling worn out, and a few other annoying side effect to deal with, but I was relieved that this was the decision. Since I've had some pretty scary reactions to chemo meds, I am terrified to try new drugs. I have done this one before, I can do it. We will also have to go back to lock down at the house. Back to limiting my time out of the house and having people over to visit.

I have lots of fun things to post from this weekend, but I'll save it from when I'm up on a steroid high eating at 3 am tomorrow morning.

Love
Jenn

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